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Thursday, October 6, 2011
Seeking Families with Children Who Have Fanconi Anemia
8 Tishrei 5772
Today's blogpost is a 2-parter. The first part is a plea for communication about coping with Fanconi Anemia:
From: Beineinu <email@example.com>
Date: Wed, Oct 5, 2011 at 8:32 AM
Subject: Beineinu Parent match--Fanconi Anemia--PLEASE FORWARD!!
To: Beineinu <firstname.lastname@example.org>
HELP ANOTHER FAMILY------
PLEASE FORWARD THIS TO YOUR ENTIRE CONTACT LIST
Dear "Beineinu Family", Thanks to all of you, we have been able to make many successful parent matches between families dealing with the effects of their children's diagnoses. This is especially helpful for those families dealing with the devastating effects of some of the rarer disorders. We have received a request from parents looking to talk to another family dealing with "FANCONI ANEMIA", which is a genetic disorder causing bone marrow failure, kidney, heart, gastrointestinal or bladder abnormalities, arm and finger deformities (such as misshapen or missing fingers, underdeveloped or missing forearm bone), light brown birthmarks, and short stature.
Children with fanconi anemia usually need to undergo bone marrow transplants due to bone marrow failure, and are at higher risk of cancer.
If you know of someone matching this description, please ask the family if they are willing to talk to another family dealing with the same issue. They are looking for the information and support that only another family can give. The requesting family talks English and some Hebrew. They are willing to call or email anywhere in the world. If you can help, please contact Golda@Beineinu.org. We will forward the information to the requesting family.
Thank you again for all of the help that you have given so far. May Hashem grant you many years of good health for your entire families. Golda Turner
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Part two is a scintillating review of some deep spiritual meaning that's perfect at this High Holiday time of year. Fascinating presentation. PROMISE!
Need some kid- plus adult-friendly and/or spiritually uplifting reading material for your medical, disability or emotionally stressful situation? Buy and read EMPOWER Yourself to Cope with a Medical Challenge. TODAY!
PS - be sure to review some sensible guidlelines about the Yom Kipur fast: 10 Tips for an Easier Fast.
Face Your Medical Problems with Dignity.
Face Your Future with Optimism.