8 Tishrei 5772
Today's blogpost is a 2-parter. The first part is a plea for communication about coping with Fanconi Anemia:
From: Beineinu <email@example.com>
Date: Wed, Oct 5, 2011 at 8:32 AM
Subject: Beineinu Parent match--Fanconi Anemia--PLEASE FORWARD!!
To: Beineinu <firstname.lastname@example.org>
HELP ANOTHER FAMILY------
PLEASE FORWARD THIS TO YOUR ENTIRE CONTACT LIST
Dear "Beineinu Family", Thanks to all of you, we have been able to make many successful parent matches between families dealing with the effects of their children's diagnoses. This is especially helpful for those families dealing with the devastating effects of some of the rarer disorders. We have received a request from parents looking to talk to another family dealing with "FANCONI ANEMIA", which is a genetic disorder causing bone marrow failure, kidney, heart, gastrointestinal or bladder abnormalities, arm and finger deformities (such as misshapen or missing fingers, underdeveloped or missing forearm bone), light brown birthmarks, and short stature.
Children with fanconi anemia usually need to undergo bone marrow transplants due to bone marrow failure, and are at higher risk of cancer.
If you know of someone matching this description, please ask the family if they are willing to talk to another family dealing with the same issue. They are looking for the information and support that only another family can give. The requesting family talks English and some Hebrew. They are willing to call or email anywhere in the world. If you can help, please contact Golda@Beineinu.org. We will forward the information to the requesting family.
Thank you again for all of the help that you have given so far. May Hashem grant you many years of good health for your entire families. Golda Turner
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Part two is a scintillating review of some deep spiritual meaning that's perfect at this High Holiday time of year. Fascinating presentation. PROMISE!
Need some kid- plus adult-friendly and/or spiritually uplifting reading material for your medical, disability or emotionally stressful situation? Buy and read EMPOWER Yourself to Cope with a Medical Challenge. TODAY!
PS - be sure to review some sensible guidlelines about the Yom Kipur fast: 10 Tips for an Easier Fast.
Face Your Medical Problems with Dignity.
Face Your Future with Optimism.
Save your sanity, time & money!
You need to know how to meet your medical and/or mental health needs NOW. You're struggling to survive moment by moment. And you need your dignity.
You're rushing to appointments (the ones you remembered) and/or wondering which treatment to use. Meanwhile, your costs are rising, your needs are changing and you hardly know how to make sense of what to do first, second and later. What about the emotions boiling inside you? How can you calm down with all that's going on?
A former medical coder and medical writer, I've been in your position. I survived a life-threatening emergency with information only a person with my professional experience would know: How to find medical innovators, medical experts and charitable organizations willing to pay part or all of an applicant's specific medical costs, who has software to simplify medical appointment scheduling, a sensible list of items to pack for hospital stays, and more.
I knew that I'd pulled through because of my ability to connect with resources I needed. I knew that most patients lack that knowledge. I decided to provide it, to minimize your suffering.
I believe in empowering terrified, confused and unhappy people with dire diagnoses. I believe that patients should not suffer insults to their dignity in medical settings. I provide information that can help you to manage your problems better, maybe to end them, in the book.
Calm down. Organize your life better. You just might get your grin back.