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A Health Information Management professional, I survived a life-threatening emergency with information that only a person of my professional experience would know. And I’m sharing it!

Showing posts with label National Brain Tumor Society. Show all posts
Showing posts with label National Brain Tumor Society. Show all posts

Monday, August 25, 2014

Laughing, Letting Go and Looking at Life with...

B'SD

29 Av, 5774

It's been a while since I posted to this blog, and for good reason. I've been traveling, seeking a home in a different city, and interviewing for employment as I dodge missiles while fellow Israelis and I mind our own business and/or try to stay alive.

It's been an emotionally charged month and a half since Tzuk Eitan, Operation Protective Edge began.

My emotions were at peak performance last week, when a misdiagnosed medical issue and the humorous resolution to the "problem" improved my mood.

Before you read further, remember what I write about in the book, mention in my public appearances, and believe with my whole heart: 

1. YOU are your own best medical advocate.

2. Keep the door open to healing/coping possibilities. Don't slam it shut in GOD's face. If you refuse to try options that can possibly help you, then GOD has nothing to work with. You've shut off your own supply system, so to speak.

Okay, back to last week's adventure: I was distressed by a mysterious medical problem, knowing full well that I will likely spend the rest of my life healing from the devastating effects of a benign brain tumor called a Petroclival Tentorial Meningioma. It had blinded and almost killed me in 2004. Life-saving surgery was in 2005.

My healing efforts focus on alternative/natural healing techniques because the Western Medical World has held no promise for my improved health or vision.  

I have been blessed with astonishing success these past nine years. My eyesight continues to improve (the prescription for my glasses was lowered for the umpteenth time in July 2014). 

My overall health and physical strength are remarkably better than that of many people my age - including that of people who've never endured a medical crisis. 

But one aspect of my recovery seemed maddeningly difficult to achieve: Sensation in my face. The former tumor's effects and the surgery to remove it had harmed the nerves which control my facial movements plus the ability to sense pain, touch or movement. My face has felt numb for a long time. I've repeatedly fallen asleep as a dentist drills my teeth to create fillings! 

So, when I consulted with my health fund's eye doctor about a swollen cheek and eyelids - let alone disturbed vision -  last week, she asked if I had other symptoms. "Yes, my face is in so much pain I'm ready to cry," I responded. "The pain is worsening by the hour." 

The doctor examined me. She could not find the source of the problem and suspected a dangerous reason for the rising pain. I was told to report to an emergency room if the pain grew severe. I followed the advice within a day. My emotions were high with fear, concern and curiosity: How could this be happening and what did it mean, medically speaking? 

Friends and I chatted around the clock as we hoped for a pleasant ending to the adventure. They wanted to pray for GOD to heal me from some dread medical problem, but I asked them not to. "Just ask GOD to make me healthier than I am. We don't have a diagnosis yet, so let's not over-dramatize the situation." 

They reluctantly agreed to my request. We prayed for my improved health.

Meanwhile, medical specialists examined me over the next 48 hours. I let some friends know that two doctors out of a rather large, growing bunch of medical professionals, suspected a rather low-key explanation for the pain. "I'm with them," I insisted. I refused to believe that a dire diagnosis was ruling the day. 

Tired of medical tests and of meeting so many medical people in a short amount of time, I began laughing as medical reports began piling up. All of them indicated excellent health and a breath-taking improvement in my ability to see. But the big, and growing bigger, medical team lacked a consensus on what had made my face and one set of eyelids swell, let alone cause astonishing pain. Two theories prevailed, but we eventually had a medical evidence tie-breaker: I was experiencing a sinus infection! Nothing more dangerous than that. WHEW!

The blessing, as all the doctors and I realized with gradual awareness, was the very pain in my face. I had almost fainted from it. 

Why? I have not felt sensation in my face for almost a decade. Suddenly I sensed the effects of sinus congestion/swelling. It's severity shocked me. THAT was a tipoff to the medical team that my facial nerves have recovered. My new task is to re-learn how to appreciate facial sensation such as touch, wind, temperature and more. 

I am grateful for the blessing. I can feel pain. I can sense pleasure, too. And I am relieved to have lived the life lesson I teach: To keep the doors open to miraculous possibilities. Who knows how this medical adventure could have turned out? 

What if I'd allowed people to pray for a miracle I didn't need? 

Or what if I'd tiraded at GOD and blamed Him/Her for the ruckus?

What if I hadn't let GOD "do the driving" so to speak?

And what If I'd rued the pain instead of realizing the blessing that it is?

Read Psalm 140. It's quite an eye-opener.

Let the soothing begin. Look at life with calmer eyes and perspective.




Buy the E-book or print edition of EMPOWER Yourself to Cope with a Medical Challenge

Face Your Medical Problems with Dignity. Face Your Future with Optimism. 

Feel the blessings in your life. Let them fill you with happiness.

PS - You can learn more about brain tumors at The National Brain Tumor Society site

 

Friday, May 16, 2014

How to Improve Your SOUL with Brain Tumor Awareness Month

B'SD

16 Iyar, 5774

Whew, I've been studying hard, doing LOTS of homework, taking many "chapter this or that" exams as I build momentum to take my medical coding finals (several tests are involved over a course of spaced intervals). Meanwhile, the rest of life continues.


May is

Want to make a positive difference in life as this young man did

Find out how you can help in hospitals and rehabilitation centers. 

Focus on your skills and interests and how they can enhance someone else's life. 

Donate your time and energy to improve the quality of life for other people. 




Heartwarming rewards will be yours to cherish. Your soul will grow as you give to others.

If you believe you can't possibly do any of that because of your medical or mental health condition, I recommend a book that explains how to overcome those and many other can-be temporary setbacks ;^ D


http://www.booklocker.com/p/books/3067.html?s=TrackingCode

Here's to looking at life as a glass half full 
and filling higher! 



Buy the E-book or print edition of EMPOWER Yourself to Cope with a Medical Challenge. Learn how to polish your emotional self to shine like silver (really!).

Face Your Medical Problems with Dignity. Face Your Future with Optimism. 

Failure is not for you.

 

Friday, June 25, 2010

Do YOU Need this Information to Cope with Your Medical Problems?

B'SD

13 Tamuz 5770


Here's a blogpost that lets you know about the comprehensive information you'll find in
EMPOWER Yourself to Cope with a Medical Challenge. Quick takes from America's National Brain Tumor Society:

At the NBTS "Headquarters" Blog
On My.BrainTumorCommunity.org, you'll find helpful information from the NBTS Patient Services staff in a weekly blog focused on various issues affecting the brain tumor community. Topics in May and June have included:

Relationship Role Changes,
Nutrition,
PT/OT,
Survivor Care Plans,
Support Groups

Read more (or leave a comment!) on the My.BrainTumorCommunity.org "Headquarters" Blog.

Upcoming conference: Living With a Brain Tumor

Save the date for

Living With a Brain Tumor -
A Patient and Family Conference
in Dallas-Ft. Worth, Texas
on October 8-9, 2010.

Stay tuned to http://www.braintumor.org/event/?Date=10/09/2010 for more information on how to register, the conference agenda, and more!

At the conference reception, NBTS will be hosting a photo gallery, and we're looking for your submissions! If you are interested in sharing your experience, please send us a digital photo and a short 250-word narrative for display. Or, email us for more information on this exciting opportunity.

Two new Fall events

We're excited to announce two Fall inaugural events - the Silicon Valley Brain Tumor Ride on September 19 in San Jose, California, and the Boston Brain Tumor Walk on October 2 in Boston, Mass.

"The Big Splash"Captain and Bay Pilot John Colgan swam across the Chesapeake Bay (4.4 miles) between the bridges in honor of his brother Douglas Howlett. Doug, who was also a Bay Pilot, is suffering from a glioblastoma multiforme. Watch a video of this remarkable swim
by clicking here.

If you think the updates above are impressive, you're going to love the additional Global Resources information in EMPOWER Yourself to Cope with a Medical Challenge. NBTS is only one of MANY worldwide resources listed there that help you and/or your loved ones at little to no cost.




Face Your Medical Problems with Dignity.
Face Your Future with Optimism.

Sunday, April 25, 2010

YOU Can Run in the Race for Hope!


B'SD

11 Iyar 5770



If you'll be in the DC area May 2 2010, grab your running shoes and join the Race for Hope!


Sign up in advance at

A 5K course in the nation's capital, the Race for Hope - DC is open to everyone, and is a fun way to join forces in the fight against brain tumors. The Race funds research and support services for those affected by this disease. Proceeds benefit National Brain Tumor Society and Accelerate Brain Cancer Cure.

Click on Donate to the Race for Hope if you want to help another way.




Want to do more to wipe out illness, and/or cope with it better than you have? Read EMPOWER Yourself to Cope with a Medical Challenge.


Coping with a Medical Crisis?
Make the Changes You Need in Your Life

Thursday, March 4, 2010

Brain Tumor Clinical Trials (no-cost medical care!) and Online Community News!

B'SD

18 Adar 5770



The National Brain Tumor Society is one of the wonderful organizations listed in the GLOBAL RESOURCES section of It's MY Crisis! And I'll Cry If I Need To: EMPOWER Yourself to Cope with a Medical Challenge.

NBTS announces that it "just launched
My.BrainTumorCommunity.Org, the most robust online community focused entirely on brain tumors. We hope that this platform will facilitate connection with and among members of the brain tumor community. Please do stop by and log on. Content on My.BrainTumorCommunity.Org comes from NBTS and members of the brain tumor community.

"We have also launched a clinical trial matching service on our website, working in collaboration with EmergingMed. This service will expedite the process of finding available clinical trials given specific diagnosis and treatment regimes."

You'll find other valuable information in
It's MY Crisis! And I'll Cry If I Need To: EMPOWER Yourself to Cope with a Medical Challenge. The prose soothes you. The humor helps you to be upbeat. The overall effect can restore your drive, joi de vivre and more.

Want to feel charged up with energy before you buy the book? Listen to one of my acquaintances blazing his way through a Chopin Etude:





Go on, act on that great sensation. Buy your copy today!



Coping with a Medical Crisis?
Make the Changes You Need in Your Life