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Need solutions for the medication, medical appliances and/or medical travel that you can't afford? READ EMPOWER Yourself.

A Health Information Management professional, I survived a life-threatening emergency with information that only a person of my professional experience would know. And I’m sharing it!

Showing posts with label benign brain tumor. Show all posts
Showing posts with label benign brain tumor. Show all posts

Sunday, September 2, 2018

An EMPOWERing Look at How to Preserve Your Health

B'SD

22 Elul, 5778

A new acquaintance asked me to explain why I step slowly and deliberately when descending stairs. He was startled at my unusual care and time-consuming pace, and a bit concerned that I would take offense at his questions. I explained the reason for my behavior in a few words, but he initially misunderstood my remarks to mean that I'd had cancer. So, I had to present the facts to him more eloquently.

Here's a recap of what I explained to him. I'm sharing it with you as a powerful reminder of the miracles that you can facilitate in your own life:

"I appreciate your kind-hearted thoughts... I take no offense, only time to smile at your intention to be helpful.

I've never had cancer, thank GOD. What I had were 5 benign meningiomas in 15 years, brain tumors that crush nerves. [Due to the 2005 incident] ... I've been left with a form of vision deficit that defies categorization. It is unique to me, caused by the crushing of all the nerves extending from my head to my spine. I'd been left completely blind and close to death. That I have recovered much of my health and sight (in color no less) is off the charts. I literally made medical history that way. GOD did, too.

I fall often, due to the struggle to remain balanced. I have a problem with proprioception: Figuring out where my body is in relationship to the earth, objects, directions, etc. My eyes and brain disagree about the messages they receive. The problem is compounded by the fact that I see double. That is why I move slowly on staircases: I must be certain that I am lowering my foot sensibly, not touching down on an illusory step that doesn't exist.

... I've written a book about how I saved my life, and why other people can save/improve theirs by mimicking the mindset and actions that I took. It received on and off-cover praise from the medical and mental health worlds. It is entitled   It's MY Crisis and I'll Cry if I Need to: EMPOWER Yourself to Cope with a Medical Challenge, a print and E- book http://booklocker.com/books/3067.html that readers can buy directly from my publisher." 

What I later mentioned to the man is that though doctors risked accidentally ending my life with life-saving surgery (the procedure is very risky to the patient), they had no idea how to restore my sight. Crushed optic nerves can't be easily puffed up again, and made to work. 

My medical records indicate that the alternative healing therapies I indulged in WORKED when a worldwide network of eye doctors and eye surgeons had no idea how to help me to see again. Some of those doctors from far-off countries have met with me to discuss the strategies I used, so that they can help their patients with those techniques. They learned of the only two practitioners able to help me to see better once GOD and I restored my sight. A man and a woman, they are mentioned in the EMPOWER Yourself  book.






Okay, blog readers, what are your thoughts about that? 

What do you suppose that you could learn from a woman who literally had to create a way to prevent death and permanent blindness because her doctors didn't know what to do to save her, and how those life lessons can help you?

Ready to find out?

Buy the E-book or print edition of EMPOWER Yourself to Cope with a Medical Challenge



http://www.booklocker.com/p/books/3067.html?s=TrackingCode


Face Your Medical Problems with Dignity. Face Your Future with Optimism.

Fill your thoughts with an "I CAN do this!" mindset.

Sunday, July 22, 2018

How to Get Your Grin Back Despite a Devastating Medical or Mental Health Setback

B'SD

9 Av, 5778

Today is the saddest one on the Jewish calendar, the 9th of Av. But I have an upbeat message to share with you.

Some days I'm surprised to remember how my can-do approach to medical setbacks have helped people. Here's one such instance, when I became physically involved in helping someone past reconstructive leg surgery!

Need a recap of what this blog and the book it's based on are all about?

How to Get Your Grin Back 
Despite a Devastating 
Medical or Mental Health Setback: 
EMPOWER Yourself to Cope 
with a Medical Challenge 

A health information management professional able to assign World Health Organization ICD medical codes for diagnoses and treatments, I learned many interesting and cost-cutting strategies for health care while at work as a medical records supervisor in hospitals. As a medical and mainstream journalist, I learned of other helpful resources for ill people. 

Over the years, I amassed a lot of this information, and earned certification in counseling. 

Then I was struck by a life-threatening but benign brain tumor. My medical team was startled to realize that I was dealing quite well with the emotionally draining aspects of the situation, and finessing the costs of my care, too. The doctors plus many people who knew me wanted to know my secret. It was information not easily learned by laymen outside the medical world, and I realized the need to share it with them. 

I invested what I knew, and how I used that information to thrive past a very debilitating experience, in a book  to be eventually updated as

It's MY Crisis! And I'll Cry If I Need To: EMPOWER Yourself to Cope with a Medical Challenge
Both versions received praise from medical and mental health professionals, and clergy of different faiths. 


I know from reader responses to the books that people worldwide have been helped by them. My instinct to inform you, the public, of what you need to know to get your grin back after a devastating medical or mental health setback has been well rewarded. 

I look forward to helping more people over time.






Buy your copy of the E-book or print edition of EMPOWER Yourself to Cope with a Medical Challenge



Face Your Medical Problems with Dignity. Face Your Future with Optimism.

Fill your recovery with a can-do attitude!

Monday, January 15, 2018

Here's What to Do When Someone Insults You as You Cry about Difficult News

B'SD

28 Tevet, 5778

I'm feeling wistful for the Jewish month about to end. I spent much of it recovering from the astonishing pain of shingles and the weakness it had caused, missing out on some people plus activities I'd longed to join.

But it was important not to over-exert myself and to prevent the shingles from reappearing!

Longing for the usual aerobic, distance walking plus other strenuous physical activities that I usually pursue, I kept reminding myself that "recovering" is an activity, so that I would not feel despair. I focused on the progressing recovery, some of it ahead of medical expectations.

I also reviewed a life lesson worth remembering. You might find it valuable, too. Here is an excerpt from the preface to



Here it is:

Human beings mint coins and they're all alike. But when the Creator mints people, each of us is unique even though we come from the same mold. Our different personalities, skills and longings necessitate different paths to achieving a state of calm after we've been startled or terrified. There are no "One size fits all" methods of calming down or gaining perspective. Yet we need to reach the state of composed thought and behavior in order to live as productively and as happily as possible under challenging circumstances. Sound reasoning enables us to choose the coping mechanisms that work for us.

Challenging? Oh yes. But the alternative to coping is worse. Life's not democratic or fair. It's a workout. Make your choice: Coping aka self-restraint or the continuing, possibly worsening problem before you.

After I revealed my diagnosis to friends and family, we cried together. Then we progressed to choosing coping skills and keeping me strong so I could have a chance to continue living. My choice to focus on sound psychological principles complemented my Orthodox Jewish religious convictions. Many of those sound psychological principles, as well as classical Jewish philosophy and laws are presented in this text. A blend of both appears in the next paragraph.

One of the worst reactions people had to my news was saying with a sense of fatalism and religious superiority over me, "You shouldn't cry. GOD only gives people the challenges they can face."  I disagree. Many a good person has experienced a psychological or medical problem, and suffered terribly or not survived it. Some medical and emotional challenges destroy no matter how valiantly we fight to survive them. Other crises can be survived. It isn't fair to lump them all in one "You can do it!" category. It blames the patient, who is suffering already. No one on this planet is authorized to pass judgment on another person's trials and tribulations. That's GOD's job.

Are you afraid that religious people or even not so religious people will blame you for your very legitimate tears and fears, because GOD knows what He's doing? Are they doing it already? These types of pithy remarks get high scores for being truthful and meaningful. But they get big fat ZEROES for actually helping someone to conquer their misery. It's as useless as telling someone dripping blood or holding onto broken limbs in an emergency room that "I FEEL YOUR PAIN." It's no help at all.

A medical diagnosis that presents a crisis is something to legitimately cry about. It is a lack of stability and a lack of reliable givens that we need so much. One of the Gates of Prayer that remains open despite the lack of a Beit HaMikdash (ancient Jewish Temple) is the Gate of Tears. Crying is a form of prayer. It says, "I'm scared, I'm sad, I'm angry, I don't know what to do about my problem. I need your help HaShem (GOD)," and more.

We learn from the Talmud in Bava Metzia 59a "Even though the Gates of Prayer are closed (after the destruction of the grand Jewish Temple called Bait HaMikdash), the Gates of Tears are never closed."

GOD keeps the Gate of Tears open so we will cry to Him. Crying is part of our relationship with Him.

Consider the reason that you're crying. Do you feel shocked, lost, confused or angry with someone, as I did? Is your teenager isolating her/himself somehow? Does she/he seem withdrawn, forgetful or angry? Those are rather normal teen-aged responses to stress.

Anger at any age can also express itself as outrage, frustration, jealousy, resentment, fury, and hatred. It can masquerade as judgment, criticism, and even (surprise!) boredom. Like all emotions, it is a complex, ever-shifting state involving thoughts, feelings, and bodily changes. So, not only do you have a medical diagnosis of concern, you also might be developing the stress of tummy upsets, unpredictable menstrual cycles, weight problems, romantic and other complications. It's a roller coaster with thrills, spills, and corkscrew turns, none of it predictable or controllable at any age.

A friend shared a relevant poem with me. I do not know the identity of the original author. I recommend that you share this deep message with loved ones so that they can learn how better to express their love from it:

Don't tell me that you understand,
Don't tell me that you know,
Don't tell me that I will survive, How I will surely grow.

Don't tell me this is just a test,
That I am truly blessed,
That I am chosen for this task,
Apart from all the rest.

Don't come at me with answers,
That can only come from me,
Don't tell me how my grief will pass,
That I will soon be free.

Don't stand in pious judgment,
Of the bounds I must untie,
Don't tell me how to suffer,
And don't tell me how to cry.

My life is filled with selfishness,
My pain is all I see,
But I need you, I need your love,
Unconditionally.

Accept me in my ups and downs,
I need someone to share,
Just hold my hand and let me cry,
And say, "My friend, I care".

All of us are holding your hand, and say... (your name)... "We care"


A medical crisis - you'd cry too, if it happened to you. Use your tissues and handkerchiefs with my blessings borne of experience. GOD gives you Permission to Weep. And you can say that to any critics after explaining that "It's MY Crisis! And I'll Cry if I Need To."










Want to learn more about how to heal from, and to cope with medical or mental health issues? 

Buy the E-book or print edition of doctor-recommended EMPOWER Yourself to Cope with a Medical Challenge







Face Your Medical Problems with Dignity. Face Your Future with Optimism.

Fill your mind and heart with growing strengths (PLURAL!).

Monday, November 20, 2017

Why YOU Need to Motivate Yourself!

B'SD

2 Kislev, 5778


I've dried many tears in order to 
share this message with you.

Two hours ago I returned home from a sophisticated vision exam, in the hospital where I'd had life-saving surgery in 2005 to remove the benign Petroclival Tentorial Meningioma that had crushed my optic nerves plus part of my brain. It had almost killed me.



Though the surgeon removed the tumor, I was left completely blind. I was so weak that I'd needed a wheelchair to get around. 

I graduated to a walker.

Then to a cane.

Then I walked on my own power, seeing what was before me. It was an ever-better future.

Though doctors had despaired that I'd recover much from the devastation of the tumor and surgery, their jaws have dropped and lifted several times over the years as they examine me and monitor my gradual recovery from HUGE physical trauma.


I keep seeing better at each exam.
The prescription for my glasses 
keeps falling.

It is 
less powerful
over time.

I have lost much of the vertigo (imbalance) and double vision plaguing me since the day of life-saving surgery. Even the odd movements of my eyes (strabismus) have lessened to a great extent.

The lead doctor following my case announced today that "Full credit" is due me for my motivation to recover, that I never abandoned that goal. He cited the fact that I have used "many" alternative healing strategies, and that they had clearly helped me.

For the record, not one hospital doctor knew how to help me to see again. My innovative optometrist did, and so did my alternative healing advisors. GOD blessed us with success.

I've prayed, I've eaten only organic food, I wear only natural fibers, I do specific eye exercises to strengthen the optic muscles, I laugh and look for reasons to smile. I do more than that to heal, but you get the idea.

Folks, I simply lack the words to tell you what's in my heart. But listen to my doctor: MOTIVATE yourself to heal, to cope, to accept your new realities and to deal with them forthrightly. 

Anger, revenge, bitterness and any sort of negativity prevents healing and coping from happening.



Yes, you need time to grieve what's been lost. The purpose of grieving is to reach a state of acceptance.

Accept your reality. Face it head-on. And figure out how best to resolve the problems, to soothe yourself, and to get your grin back.


Life can be worth living if YOU make it so.





Buy the motivational, can-do E-book or print edition of EMPOWER Yourself to Cope with a Medical Challenge



http://www.booklocker.com/p/books/3067.html?s=TrackingCode


Face Your Medical Problems with Dignity. Face Your Future with Optimism.

Fill YOUR life with medical miracles.

Monday, February 15, 2016

Care to Share Your Thoughts about Movie-making?

B'SD

6 Adar 1, 5776

Life remains pleasantly interesting this week.

I've been asked to appear in a documentary about brain tumor survivors. According to the producer, "It will be released and distributed in movie theatres worldwide, and broadcast by major TV Channels all around the globe."


Yes, it is a reputable company, one you'd recognize. The connection to me was made by a reputable individual whom I know in real life. I prefer not to share specific details just yet as no commitments have been made at this early date.



WHAT do you want to hear me say?


What do you want to know about surviving and facing brain tumors? You can even ask about the specific sort of brain tumor, a Petroclival Tentorial Meningioma, that I experienced.

Meningiomas come in many shapes and sizes, let alone locations in the brain. Sometimes they come in pairs.


Please leave your response in the
"Comments" section 
below this blogpost.




Buy the E-book or print edition of EMPOWER Yourself to Cope with a Medical Challenge





Face Your Medical Problems with Dignity. Face Your Future with Optimism.

Fill your mind with relevant questions, then find the answers you need.

Monday, July 27, 2015

Celebrate 10 Years of LIFE with Me!

B'SD

12 Av, 5775

Yesterday was the 10th anniversary of my life-saving emergency brain surgery! 



Celebrate the recovery of my vision and health with a print or digital copy of a doctor-recommended book that describes how YOU can cope with YOUR medical challenges. 






Find out how to calm down even when your life is on the line.

Learn what to do about rude medical professionals, in-laws and outlaws.

Compare your hospital packing list with empowering, safe suggestions.

Check out the Global Resources section of the book that informs you of worldwide organizations willing to pay for part or all of your specific medical needs. All you have to do is to ask!

Learn how to laugh again, despite the heartache and fear.





Buy the E-book or print edition of EMPOWER Yourself to Cope with a Medical Challenge





Face Your Medical Problems with Dignity. Face Your Future with Optimism.

Fill your life with life-saving options.

Thursday, May 2, 2013

May is Brain Tumor Awareness Month

B'SD

22 Iyar, 5773

With a whole month of international educational initiatives going on, this blog is ready to alert you to several resources for helping people with brain tumors:

The American Brain Tumor Association.

The American Neurological Association (this news item lists brain tumor symptoms)

Brain Tumor Buddies of the UK.

The Brain Tumour Foundation of Canada.

The Musella Foundation for Brain Tumor Research and Information.

The National Brain Tumor Society.




Need inspiration, maybe more information about dealing with brain tumors? Click on the words EMPOWER Yourself to Cope with a Medical Challenge.  

Face Your Medical Problems with Dignity. Face Your Future with Optimism. 

Fill yourself with information you need.


 

Monday, December 3, 2012

Trust, Data and Delay? vs How to Get Better Today

B'SD

19 Kislev, 5773

One of the recurring themes in the medical world is the issue of trust. Optimists tend to do better at healing than pessimists.

Pessimists pretty much close the door on healing possibilities, let alone better moods. Sometimes, pessimists and their confused procrastinating cousins over-focus on collecting information before they make one move in a medically necessary direction.

I tend to quote Dr. Kevin Pho often on Twitter. He's a marvel of "You can do it!" compassion, insight and integrity. 

I have another hero with the same qualifications, Dr. Ben Corn. I suggest that you read his take on To Trust, To Heal, especially the last four (short) paragraphs.

Dr. Corn's ideas are consistent with what's written in the EMPOWER Yourself book:


All First Steps are Difficult.

Beginnings are hard. Change is difficult. Normal people who really want to take positive steps sometimes find that they are overwhelmed with fear, sadness, and even fatigue. They know they're not moving forward. I have good news for such people! It's not a sign of failure.

If you haven't actually decided to live past your medical crisis yet, or if your resolve wavers sometimes, work on accomplishing that task. Set aside time to dwell on the idea. Use whatever time you can steal from pointless games of solitaire, sitting in the dark mourning your situation, or an argument that you don't really want to have. Steal some time RIGHT NOW and tell yourself that you are going to live past your medical crisis.

Have you made progress, then felt as if you've slipped backward? You're having a normal reaction to the give and take of the healing process. Falling down from an uphill climb lets you gain perspective on what you've accomplished so far. And part of what you'll learn is that you developed new vistas of courage even as you trembled.

My friend and former neighbor Dr. Miriam Adahan created the EMETT (Emotional Maturity Established Through Torah) system of maintaining perspective in an emotional crunch. In the EMETT system, Dr. Adahan teaches us that "Emotions rise and fall like ocean waves. They have a life of their own. It takes practice to gain and to keep control of our inner turmoil."

If you started to develop or to strengthen your coping skills and slipped into a state of unhappiness and a downward slide, I welcome you to the world of reality. It happens to the nicest, noblest people, King David, Forefather Jacob and Foremother Rachel among them.

In either case, I suggest that you focus on the things that are working for you. Air is free. So is sunshine. Snow decorates the outdoors and your eyes as you look at it. Rain gives life. Puddles are for squishing. Use your wheelchair, prosthesis or whatever's handy to make a splash.

Oh – about that fatigue. The link below is for an article that explains why so many people suffer from fatigue, starting before or on the day of diagnosis, throughout the treatment period (of any type) and possibly far into the future. Though it addresses brain tumors specifically, it is applicable to other diagnoses. Share the article with families and friends. Help them to appreciate your situation and to adjust their responses to it: Your Guide to Brain Tumor Surgery Fatigue 


Stalling prevents you from improving the health of your body and mind. Improve that reality today. Buy the E-book or print edition today for a more upbeat look at your medical, convalescence or disability future. Click on the words EMPOWER Yourself to Cope with a Medical Challenge

Face Your Medical Problems with Dignity. Face Your Future with Optimism. 

 

Thursday, June 7, 2012

The Book Sheryl Crow Needs to Read

B'SD


17 Sivan 5772


Anyone listening to or reading the news probably knows by now that singer Sheryl Crow has a Meningioma, the very form of benign brain tumor that almost KILLED me!

What are the odds that she'll avoid future complications NOT being addressed in this news item? I'd say low unless she has a far more astute neurologist and neurosurgeon on her medical team. The doctor quoted in this article makes dismissive comments, as if Meningiomas were as harmless as freckles. True, some people get past their Meningiomas easily. But others face deadly implications. Readers need to know that:

  •  Meningiomas tend to come in pairs 
  • Crush nerves 
  • Cause cognitive, vision, balance, hearing and other problems. 
  •  One Meningioma can hide behind the other and not be detected on MRIs
  • Necessary surgery or Stereotactic Radiation treatments can cause secondary problems
  • The potential for further, crippling damage to the person with the hidden tumor is BIG 
  •  Meningiomas can cause death

    What a waste of an opportunity to educate the masses, FOX News. 

    For some of us mortals, Meningiomas can present life and death situations.

    That's a medical CRISIS worth crying over.

A medical crisis - you'd cry too, if it happened to you. Use your tissues and handkerchiefs with my blessings borne of experience. GOD gives you Permission to Weep. And you can say that to any critics after explaining that "It's MY Crisis! And I'll Cry if I Need To." Show them page 5 of the book to prove your point.




The Baltimore Sun did a better job of presenting an overview of Meningiomas at Brain Tumor Facts

Dry your tears as you read E-book or print edition EMPOWER Yourself to Cope with a Medical Challenge. Buy it at http://booklocker.com/books/3067.html 


Face Your Medical Problems with Dignity.
Face Your Future with Optimism.

Tuesday, April 24, 2012

Embracing Your Emotional, Physical, Spiritual and Mental Health

B'SD


2 Iyar 5772


Iyar is a month with a powerful message on the Jewish calendar. It's letters spell an acronym in Hebrew: I am GOD your Healer.


then let me know your thoughts about it.


A medical crisis - you'd cry too, if it happened to you. Use your tissues and handkerchiefs with my blessings borne of experience. GOD gives you Permission to Weep. And you can say that to any critics after explaining that "It's MY Crisis! And I'll Cry if I Need To." See the heavenly license to cry, and to cope with illness, disability and sadness, on page 5 of 







Buy the E-book or print edition today for a brighter future: Click http://booklocker.com/books/3067.html

Face Your Medical Problems with Dignity.
Face Your Future with Optimism.




Monday, August 15, 2011

Triumph Over a Tumor

B'SD


15 Av 5771




You're invited to read a brief account of how I recovered from a life-threatening situation at

Yocheved Golani - Triumph Over Tumor


The medical miracles in my life are worthy of headline updates. Read the book I wrote to learn how YOU
 
can lower your emotional and financial costs over a medical issue.




EMPOWER Yourself to Cope with a Medical Challenge at http://booklocker.com/books/3067.html




Face Your Medical Problems with Dignity.
Face Your Future with Optimism.