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Need solutions for the medication, medical appliances and/or medical travel that you can't afford? READ EMPOWER Yourself.

A Health Information Management professional, I survived a life-threatening emergency with information that only a person of my professional experience would know. And I’m sharing it!

Showing posts with label brain tumor. Show all posts
Showing posts with label brain tumor. Show all posts

Friday, January 11, 2019

Financial Help for People with Brain Tumors

B'SD

5 Shvat, 5779

Dr Musella's organization (the Musella Brain Tumor Research Foundation) is superb and his own upbeat remark is among the back-cover praises for the EMPOWER Yourself to Cope with a Medical Challenge book.

Check out the Just Announced good news for people who need financial help with brain tumor treatment!


Our copayment assistance program is probably going to reopen soon!
Comments
  • Tiffani Rockwell Fomera What program is that?
  • Melanie Metcalf Lovell Tiffani, it helps people to purchase medicine when they might not otherwise be able to due to high insurance co-pays/deductibles. This is the program I have always contributed to, because as necessary as animal testing may be, as a vegan I am not comfortable funding testing on animals. This is a win-win....I can contribute to this program and help those fighting GBMs without funding animal research.
  • Al Musella Braintumorcopays.org we help malignant brain tumor patients pay for Optune, Temodar, Gliadel and Avastin!
    BRAINTUMORCOPAYS.ORG
    Home - Brain Tumor Drug Copayment Assistance Program!
    Home - Brain Tumor Drug Copayment Assistance Program!
    1
  • Al Musella As to animal research, for those of you who do not want to fund animal research, you can tell us to only use the donation for human research. We gave a $1 million grant which will only be used to treat pediatric brain tumors - the grant is 4 payments of $250,000 over 3 years. We are saving up for the next payment. You can always donate to that!

There's more helpful information for people with other medical and mental health issues in the Global Resources section of




 


Want to cope with medical and/or mental health problems, including the expenses for your care? Buy the E-book or print edition of EMPOWER Yourself to Cope with a Medical Challenge



http://www.booklocker.com/p/books/3067.html?s=TrackingCode


Face Your Medical Problems with Dignity. Face Your Future with Optimism.

Fill your life with solutions!

Sunday, July 22, 2018

How to Get Your Grin Back Despite a Devastating Medical or Mental Health Setback

B'SD

9 Av, 5778

Today is the saddest one on the Jewish calendar, the 9th of Av. But I have an upbeat message to share with you.

Some days I'm surprised to remember how my can-do approach to medical setbacks have helped people. Here's one such instance, when I became physically involved in helping someone past reconstructive leg surgery!

Need a recap of what this blog and the book it's based on are all about?

How to Get Your Grin Back 
Despite a Devastating 
Medical or Mental Health Setback: 
EMPOWER Yourself to Cope 
with a Medical Challenge 

A health information management professional able to assign World Health Organization ICD medical codes for diagnoses and treatments, I learned many interesting and cost-cutting strategies for health care while at work as a medical records supervisor in hospitals. As a medical and mainstream journalist, I learned of other helpful resources for ill people. 

Over the years, I amassed a lot of this information, and earned certification in counseling. 

Then I was struck by a life-threatening but benign brain tumor. My medical team was startled to realize that I was dealing quite well with the emotionally draining aspects of the situation, and finessing the costs of my care, too. The doctors plus many people who knew me wanted to know my secret. It was information not easily learned by laymen outside the medical world, and I realized the need to share it with them. 

I invested what I knew, and how I used that information to thrive past a very debilitating experience, in a book  to be eventually updated as

It's MY Crisis! And I'll Cry If I Need To: EMPOWER Yourself to Cope with a Medical Challenge
Both versions received praise from medical and mental health professionals, and clergy of different faiths. 


I know from reader responses to the books that people worldwide have been helped by them. My instinct to inform you, the public, of what you need to know to get your grin back after a devastating medical or mental health setback has been well rewarded. 

I look forward to helping more people over time.






Buy your copy of the E-book or print edition of EMPOWER Yourself to Cope with a Medical Challenge



Face Your Medical Problems with Dignity. Face Your Future with Optimism.

Fill your recovery with a can-do attitude!

Friday, February 23, 2018

The Power of Optimism

B'SD

8 Adar, 5778

Whew, the happiness of Purim  culminates next week (Wednesday night and Thursday for most people this year, Thursday night and Friday for Jews in Jerusalem). I'm hanging on to that as sad headlines fill newscasts.

About feeling down... Plato had something to say about that.




Let's look at life from a different angle, to cheer up a bit, OK?


  I want to share some nice news. This past summer, the neuro-ophthalmologist following my case (recovery from total blindness due to crushed optic nerves, and very compromised health) made an announcement dictated into my official medical records. He indicated that none of the staff members had had a clue how to help me to see again once the BENIGN brain tumor had been removed after crushing my optic and other nerves. However, "full credit goes to the patient who invested in alternative healing techniques" and recovered her vision and strength (I do aerobics, swim, bike, work, and have a social life). She had faith in herself and her future, and figured out how to restore her sight. 

Read about what I'd done to heal, how and why other ill people can mimic those actions and mindsets to heal as well as they can, too. 


Buy the E-book or print edition of EMPOWER Yourself to Cope with a Medical Challenge



Find out what's possible for YOU.






Face Your Medical Problems with Dignity. Face Your Future with Optimism.

Fill your efforts with a can-do attitude. Heal your heart and mind, maybe your body.

Monday, January 15, 2018

Here's What to Do When Someone Insults You as You Cry about Difficult News

B'SD

28 Tevet, 5778

I'm feeling wistful for the Jewish month about to end. I spent much of it recovering from the astonishing pain of shingles and the weakness it had caused, missing out on some people plus activities I'd longed to join.

But it was important not to over-exert myself and to prevent the shingles from reappearing!

Longing for the usual aerobic, distance walking plus other strenuous physical activities that I usually pursue, I kept reminding myself that "recovering" is an activity, so that I would not feel despair. I focused on the progressing recovery, some of it ahead of medical expectations.

I also reviewed a life lesson worth remembering. You might find it valuable, too. Here is an excerpt from the preface to



Here it is:

Human beings mint coins and they're all alike. But when the Creator mints people, each of us is unique even though we come from the same mold. Our different personalities, skills and longings necessitate different paths to achieving a state of calm after we've been startled or terrified. There are no "One size fits all" methods of calming down or gaining perspective. Yet we need to reach the state of composed thought and behavior in order to live as productively and as happily as possible under challenging circumstances. Sound reasoning enables us to choose the coping mechanisms that work for us.

Challenging? Oh yes. But the alternative to coping is worse. Life's not democratic or fair. It's a workout. Make your choice: Coping aka self-restraint or the continuing, possibly worsening problem before you.

After I revealed my diagnosis to friends and family, we cried together. Then we progressed to choosing coping skills and keeping me strong so I could have a chance to continue living. My choice to focus on sound psychological principles complemented my Orthodox Jewish religious convictions. Many of those sound psychological principles, as well as classical Jewish philosophy and laws are presented in this text. A blend of both appears in the next paragraph.

One of the worst reactions people had to my news was saying with a sense of fatalism and religious superiority over me, "You shouldn't cry. GOD only gives people the challenges they can face."  I disagree. Many a good person has experienced a psychological or medical problem, and suffered terribly or not survived it. Some medical and emotional challenges destroy no matter how valiantly we fight to survive them. Other crises can be survived. It isn't fair to lump them all in one "You can do it!" category. It blames the patient, who is suffering already. No one on this planet is authorized to pass judgment on another person's trials and tribulations. That's GOD's job.

Are you afraid that religious people or even not so religious people will blame you for your very legitimate tears and fears, because GOD knows what He's doing? Are they doing it already? These types of pithy remarks get high scores for being truthful and meaningful. But they get big fat ZEROES for actually helping someone to conquer their misery. It's as useless as telling someone dripping blood or holding onto broken limbs in an emergency room that "I FEEL YOUR PAIN." It's no help at all.

A medical diagnosis that presents a crisis is something to legitimately cry about. It is a lack of stability and a lack of reliable givens that we need so much. One of the Gates of Prayer that remains open despite the lack of a Beit HaMikdash (ancient Jewish Temple) is the Gate of Tears. Crying is a form of prayer. It says, "I'm scared, I'm sad, I'm angry, I don't know what to do about my problem. I need your help HaShem (GOD)," and more.

We learn from the Talmud in Bava Metzia 59a "Even though the Gates of Prayer are closed (after the destruction of the grand Jewish Temple called Bait HaMikdash), the Gates of Tears are never closed."

GOD keeps the Gate of Tears open so we will cry to Him. Crying is part of our relationship with Him.

Consider the reason that you're crying. Do you feel shocked, lost, confused or angry with someone, as I did? Is your teenager isolating her/himself somehow? Does she/he seem withdrawn, forgetful or angry? Those are rather normal teen-aged responses to stress.

Anger at any age can also express itself as outrage, frustration, jealousy, resentment, fury, and hatred. It can masquerade as judgment, criticism, and even (surprise!) boredom. Like all emotions, it is a complex, ever-shifting state involving thoughts, feelings, and bodily changes. So, not only do you have a medical diagnosis of concern, you also might be developing the stress of tummy upsets, unpredictable menstrual cycles, weight problems, romantic and other complications. It's a roller coaster with thrills, spills, and corkscrew turns, none of it predictable or controllable at any age.

A friend shared a relevant poem with me. I do not know the identity of the original author. I recommend that you share this deep message with loved ones so that they can learn how better to express their love from it:

Don't tell me that you understand,
Don't tell me that you know,
Don't tell me that I will survive, How I will surely grow.

Don't tell me this is just a test,
That I am truly blessed,
That I am chosen for this task,
Apart from all the rest.

Don't come at me with answers,
That can only come from me,
Don't tell me how my grief will pass,
That I will soon be free.

Don't stand in pious judgment,
Of the bounds I must untie,
Don't tell me how to suffer,
And don't tell me how to cry.

My life is filled with selfishness,
My pain is all I see,
But I need you, I need your love,
Unconditionally.

Accept me in my ups and downs,
I need someone to share,
Just hold my hand and let me cry,
And say, "My friend, I care".

All of us are holding your hand, and say... (your name)... "We care"


A medical crisis - you'd cry too, if it happened to you. Use your tissues and handkerchiefs with my blessings borne of experience. GOD gives you Permission to Weep. And you can say that to any critics after explaining that "It's MY Crisis! And I'll Cry if I Need To."










Want to learn more about how to heal from, and to cope with medical or mental health issues? 

Buy the E-book or print edition of doctor-recommended EMPOWER Yourself to Cope with a Medical Challenge







Face Your Medical Problems with Dignity. Face Your Future with Optimism.

Fill your mind and heart with growing strengths (PLURAL!).

Monday, November 20, 2017

Why YOU Need to Motivate Yourself!

B'SD

2 Kislev, 5778


I've dried many tears in order to 
share this message with you.

Two hours ago I returned home from a sophisticated vision exam, in the hospital where I'd had life-saving surgery in 2005 to remove the benign Petroclival Tentorial Meningioma that had crushed my optic nerves plus part of my brain. It had almost killed me.



Though the surgeon removed the tumor, I was left completely blind. I was so weak that I'd needed a wheelchair to get around. 

I graduated to a walker.

Then to a cane.

Then I walked on my own power, seeing what was before me. It was an ever-better future.

Though doctors had despaired that I'd recover much from the devastation of the tumor and surgery, their jaws have dropped and lifted several times over the years as they examine me and monitor my gradual recovery from HUGE physical trauma.


I keep seeing better at each exam.
The prescription for my glasses 
keeps falling.

It is 
less powerful
over time.

I have lost much of the vertigo (imbalance) and double vision plaguing me since the day of life-saving surgery. Even the odd movements of my eyes (strabismus) have lessened to a great extent.

The lead doctor following my case announced today that "Full credit" is due me for my motivation to recover, that I never abandoned that goal. He cited the fact that I have used "many" alternative healing strategies, and that they had clearly helped me.

For the record, not one hospital doctor knew how to help me to see again. My innovative optometrist did, and so did my alternative healing advisors. GOD blessed us with success.

I've prayed, I've eaten only organic food, I wear only natural fibers, I do specific eye exercises to strengthen the optic muscles, I laugh and look for reasons to smile. I do more than that to heal, but you get the idea.

Folks, I simply lack the words to tell you what's in my heart. But listen to my doctor: MOTIVATE yourself to heal, to cope, to accept your new realities and to deal with them forthrightly. 

Anger, revenge, bitterness and any sort of negativity prevents healing and coping from happening.



Yes, you need time to grieve what's been lost. The purpose of grieving is to reach a state of acceptance.

Accept your reality. Face it head-on. And figure out how best to resolve the problems, to soothe yourself, and to get your grin back.


Life can be worth living if YOU make it so.





Buy the motivational, can-do E-book or print edition of EMPOWER Yourself to Cope with a Medical Challenge



http://www.booklocker.com/p/books/3067.html?s=TrackingCode


Face Your Medical Problems with Dignity. Face Your Future with Optimism.

Fill YOUR life with medical miracles.