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A Health Information Management professional, I survived a life-threatening emergency with information that only a person of my professional experience would know. And I’m sharing it!
Sunday, June 17, 2007
Resources and an Interactive Invitation
My book's Resources section holds a collection of information about potential resources that might prove helpful to you and/or to someone you know. Some of the information was gleaned from websites and press releases issued by specific organizations, plus acquaintances of mine in the medical world. Unless specified, that compilation is not an endorsement of listed resources, and not an exhaustive resource list. It is a small collection of data that is potentially helpful to and relevant for people facing medical situations.
Contact information tends to change over time. I hope that readers of my book will seek out newer phone/fax numbers, snail and E-mail addresses, and the names of relevant parties by using the phone book (in the USA, the Yellow Pages can be a tremendously good resource), the Internet, libraries, and by networking with social services, friends and acquaintances.
When you find a resource in my text that is not situated in your community, consider looking for something similar in your city, state and country. You can do the same sort of search for resources not listed below but which you may need.
Alternative healing therapies and traditional medicine have their place. Whichever form of healing art suits a particular patient's needs and personality that is the one to use.
I suggest that you read the Resources section in my book and down below slowly and very carefully. Don't stop when you locate one or two pieces of relevant information. Find every potential resource listed for the situation you need to finesse. Some of the data you need might be listed under a heading that surprises you.
What are some of the diseases addressed in my book's Resources section? Alzheimer's Disease, Aspberger Syndrome, Autism, many forms of Cancer - including Glioblastoma Multiforme (for which a cure may have been found!); Diabetes, Hearing Problems, Learning Disabilities, Mental Health Issues, Neurological diseases, Substance Abuse, plus Vision Problems from the common to the rarer types. And there is much, much more. The book also includes resources for communicating with people/organizations that help you to locate the best practioner for your type of problem. There is information about free and price-reduced medication and medical appliances, transportation assistance to medical appointments and other helpful people, places and things.
I invite you to let me know about additional outlets for medical and/or mental health that I can include in future editions of this workbook. Please notify me of those resources at firstname.lastname@example.org. I will do my best to check out the legitimacy of those suggestions and include them on this page over time.
Here's one such resource, good for humor during a very difficult time: http://virtualtrials.com/news3.cfm?item=3919 :The Stupid Cancer Show - tribute to David Bailey and Kevin Carlberg
My thanks go to Al Musella DPM, president of the Musella Foundation for Brain Tumor Research and Information for this update: http://virtualtrials.com/news3.cfm?item=3923 : Worlds First Therapeutic Vaccine for Brain Cancer Commercially Available to Patients in Switzerland
Here's a feature story about successful Endonasal surgery (going through the nose to remove brain tumors): http://www.thestar.com/Article/233786