26 Kislev, 5777
If you want to make holiday season happier and healthier for someone, give them a book that a Methodist minister, rabbi, medical and mental health practitioners recommend:
There's a reason that it's been in the #1 or @2 spot at the Recommended Reading spot of the Musella Foundation site almost since the first edition came out!
Need to give your gift super-fast? Choose the E-book for immediate delivery.
Buy the E-book or print edition of EMPOWER Yourself to Cope with a Medical Challenge.
Here's an excerpt of the soothing text that helps you to rank priorities and to find solutions to many kinds of problems:
Listen to the Person Before You - Lessons for Caregivers
I'm going to address a troubling problem for ill people:
rude and cruel caregivers who pay little, if any, attention to the patient’s
remarks. I've witnessed this maddening glitch first-hand as a witness to, and
as the victim of, someone's failure to listen.
Many caregivers insist that they are noble, correct and in charge when caring for patients be they friends, relatives or clients. HOWEVER... here's how the conversations between some caregivers and the people they're allegedly caring for tend to go (fill in the blanks as appropriate.):
"I know what you need..."
"I want to..."
"Stop talking. Listen to me; I know what's best for you..."
"I'm going to... Now just stop that and let me..."
"I don't want to hear you say 'I can't.' Would you just let me...?"
Did you hear the sick person above the din? Me neither. And far too often that silence leads to a deteriorating patient who's already ill, and an increasingly strained relationship.
The name of the problem is "Inflated Ego." Or what is sometimes called "I Disease." The caregiver is bossing around the ill person, issuing this barrage of "I, I, I, I," messages while genuine medical needs go unmet. This is not a healthy situation. So, I'm providing a reality alert: The caregiver is NOT the most important person in this scene. The patient is the VIP (Very Important Person) here!
Here's the information that's being drowned out, along with the despairing person who needs medical help:
"That's the wrong medication/food you're giving me."
"You're hurting me when you move me around so hard. I'm not a rock."
"You're still holding the wrong medication/food."
"The doctor said not to do it like that. You're supposed to read the directions."
"You bet I'm upset! Please stop talking/shouting/screaming over me and listen. Just listen!"
***
Ready to close your mouths and find out how to solve the problem? Great! Hold that pose while the ill person in your care expresses their concerns. Next, wait for him or her to ask you to explain what you heard and understood. Only then may you speak. Get it? Conversation is an interactive activity.
When you enter the ill person's room, do not start talking. Smile. Observe the scene: does the ill person seem tired/rested/content/upset/warm/cold/in or out of pain?
Ask the patient these questions, one at a time: "How are you?" and "Did anything change since we last spoke?" "Please tell me if you want something." Then LISTEN without interrupting as the person responds to you, one question at a time.
Do not treat sick people as fools. Do not threaten them. Do not speak in a condescending manner to people who are sick. You might be dealing with neurological or physiological changes that the patient(s) cannot control. This is not a matter of patient willpower, this is a medical reality. You might not realize the level of physical or emotional pain you're unnecessarily causing to that person. You just might damage someone's already fragile health by using the wrong medicine, medical appliance or food item, let alone the wrong attitude.
Ordering ill people to "Snap out of it! Stop acting sad and sick" is cruel. Behave respectfully or have someone else perform the personal care. Your change in behavior just might improve someone's quality of life. Prevent unwarranted suffering. Remember: communication is supposed to be fair and productive. Good communication ends in relief.
One more item on this sensitive subject: study the sick person's behavior and body when hired help is providing medical care. Elder abuse and other abuses in the medical world exist. Prevent and end them by practicing good sense. Listen with your ears, eyes and heart.
Many caregivers insist that they are noble, correct and in charge when caring for patients be they friends, relatives or clients. HOWEVER... here's how the conversations between some caregivers and the people they're allegedly caring for tend to go (fill in the blanks as appropriate.):
"I know what you need..."
"I want to..."
"Stop talking. Listen to me; I know what's best for you..."
"I'm going to... Now just stop that and let me..."
"I don't want to hear you say 'I can't.' Would you just let me...?"
Did you hear the sick person above the din? Me neither. And far too often that silence leads to a deteriorating patient who's already ill, and an increasingly strained relationship.
The name of the problem is "Inflated Ego." Or what is sometimes called "I Disease." The caregiver is bossing around the ill person, issuing this barrage of "I, I, I, I," messages while genuine medical needs go unmet. This is not a healthy situation. So, I'm providing a reality alert: The caregiver is NOT the most important person in this scene. The patient is the VIP (Very Important Person) here!
Here's the information that's being drowned out, along with the despairing person who needs medical help:
"That's the wrong medication/food you're giving me."
"You're hurting me when you move me around so hard. I'm not a rock."
"You're still holding the wrong medication/food."
"The doctor said not to do it like that. You're supposed to read the directions."
"You bet I'm upset! Please stop talking/shouting/screaming over me and listen. Just listen!"
***
Ready to close your mouths and find out how to solve the problem? Great! Hold that pose while the ill person in your care expresses their concerns. Next, wait for him or her to ask you to explain what you heard and understood. Only then may you speak. Get it? Conversation is an interactive activity.
When you enter the ill person's room, do not start talking. Smile. Observe the scene: does the ill person seem tired/rested/content/upset/warm/cold/in or out of pain?
Ask the patient these questions, one at a time: "How are you?" and "Did anything change since we last spoke?" "Please tell me if you want something." Then LISTEN without interrupting as the person responds to you, one question at a time.
Do not treat sick people as fools. Do not threaten them. Do not speak in a condescending manner to people who are sick. You might be dealing with neurological or physiological changes that the patient(s) cannot control. This is not a matter of patient willpower, this is a medical reality. You might not realize the level of physical or emotional pain you're unnecessarily causing to that person. You just might damage someone's already fragile health by using the wrong medicine, medical appliance or food item, let alone the wrong attitude.
Ordering ill people to "Snap out of it! Stop acting sad and sick" is cruel. Behave respectfully or have someone else perform the personal care. Your change in behavior just might improve someone's quality of life. Prevent unwarranted suffering. Remember: communication is supposed to be fair and productive. Good communication ends in relief.
One more item on this sensitive subject: study the sick person's behavior and body when hired help is providing medical care. Elder abuse and other abuses in the medical world exist. Prevent and end them by practicing good sense. Listen with your ears, eyes and heart.
Here’s a handy list of caregiver tips, developed from my
personal experience and that of some of my Self-Help Coaching clients:
·
·
Ask everyone who enters the patient’s room if they have washed their hands.
"No" and silence are NOT acceptable responses.
·
Ask nurses to read drug orders out loud and match them to the patient’s arm
bracelet BEFORE giving something to the patient.
·
Bring easily portable stuff on visits: a deck of cards, iPODs or other
devices for playing music, or something else that the patient enjoys. Coax the
patient to use his or her brain.
·
Keep a little notebook with your observations so you can discuss your
concerns with medical staff, family and friends in a productive NOT GOSSIPY
manner. Write the notes discreetly. Trust me, sick people notice things. And we
tend to be easily upset.
·
NEVER give a patient medication without proper supervision.
·
Don’t help the patient in and out of bed unless the medical staff trained
you to do this safely.
·
Find out if meals
can be safely made by other people.
·
·
The challenging medical situation is a hard thing to manage on its own.
·
Gently and firmly explore what will help
the person to relax, to enjoy restful, restorative sleep.
·
Offer to help
the person to create a list of goals on a paper or a poster-board they can more
easily read. Check off accomplishments and celebrate them.
While we're on the topic of patience and perspective,
consider this: One of the worrisome - and dangerous - problems for people with
cancer is loss of appetite from chemotherapy (sometimes referred to as Cancer
Anorexia). That causes an ever-lowering calorie count. Not a good side-effect!
Cancer upsets metabolism. Chemotherapy traumatizes the human body, creating the need for superb nutrition. Side-effects such as nausea, vomiting, diarrhea and physical weakness from chemotherapy make food most unappetizing. Both problems combined mean the affected person keeps losing weight, mostly from muscle loss.
A delightful solution to the problems is to put some thought, family and friendship energy into preparing highly nutritious and visually appealing meals for a person with cancer. Imagine the good that can do for someone who desperately needs body-building food.
The need for nutrition is true for any seriously ill person, no matter who is facing a medical crisis or why. Look at the situation from the situation of a sick child, elderly person, or anyone who's ill and their worldview. Do they lack teeth? Do they have mouth sores that will be further irritated by food and hot or cold temperatures? Is the person's gag reflex going to be problematic?
Cancer upsets metabolism. Chemotherapy traumatizes the human body, creating the need for superb nutrition. Side-effects such as nausea, vomiting, diarrhea and physical weakness from chemotherapy make food most unappetizing. Both problems combined mean the affected person keeps losing weight, mostly from muscle loss.
A delightful solution to the problems is to put some thought, family and friendship energy into preparing highly nutritious and visually appealing meals for a person with cancer. Imagine the good that can do for someone who desperately needs body-building food.
The need for nutrition is true for any seriously ill person, no matter who is facing a medical crisis or why. Look at the situation from the situation of a sick child, elderly person, or anyone who's ill and their worldview. Do they lack teeth? Do they have mouth sores that will be further irritated by food and hot or cold temperatures? Is the person's gag reflex going to be problematic?
Scolding is NOT appropriate. Making fun of the person
refusing or unable to eat is cruel, not helpful. Neither are guilt trips. Cook
up a meal and a plan to get the suffering person to eat it. Focus on pleasure,
soothing results, and compassion.
Find solutions. Use blenders to create smooth, easily
swallowed textures. Straws make food fun for little ones sipping blended food
with soup or water added to it. Warmish gello is a quick picker-upper for
someone trying to build strength to swallow more nutritious fare (it also
soothes sore throats). Use towels as bibs for larger diners who spill food
despite their best efforts to be neat. DO NOT COMPLAIN about the laundry this
will cause. Here's a nice dessert for everyone involved: by helping the ill
person to eat better, you'll feel better for expressing a level of kindness
unparalleled in the medical world.
While we're on the topic of good manners, here's the
skinny on Wheelchair Etiquette 101:
People who use wheelchairs don’t do that for your
convenience. Think of it this way: the wheelchair is similar to an arm, leg or
any other necessary body part for the person sitting in one. A wheelchair is
literally the extension of a person's body, not a toy or handy-dandy catch-all.
You don't smear fingerprints on someone's glasses, do you?
Try out their hearing aids? Of course not; that's crossing personal boundaries.
When you fail to heed the personal boundaries that wheelchairs represent, you
make people uncomfortable...
Face Your Medical Problems with Dignity. Face Your Future with Optimism.
Fill your shopping list with things that people appreciate!
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