Save your sanity, time & money!

Need solutions for the medication, medical appliances and/or medical travel that you can't afford? READ EMPOWER Yourself.

A Health Information Management professional, I survived a life-threatening emergency with information that only a person of my professional experience would know. And I’m sharing it!

Showing posts with label orphan drugs. Show all posts
Showing posts with label orphan drugs. Show all posts

Wednesday, February 8, 2017

Heart-warming, LIFE-Saving News!

B'SD

12 Shvat, 5777

It's almost the holiday of Tu B'Shvat (Shvat 15th), the new year for trees, a sign of health for humanity. I am thrilled to share the following news at this time:

Whew! I was part of this pro-active fight back when I was working on-site in a US medical facility. Humanity WON!!!! YES!!!!!



White House backs ‘right to try’ law for terminally ill patients
The Food & Drug Administration campus in Silver Spring, Md. Proponents of a federal Right to Try law, which would give terminally ill patients easier access to experimental medicines, won support from the White House.
The Food & Drug Administration campus in Silver Spring, Md. Proponents of a federal Right to Try law, which would give terminally ill patients easier access to experimental medicines, won support from the White House. PHOTO: ANDREW HARNIK/ASSOCIATED PRESS




Buy the E-book or print edition of EMPOWER Yourself to Cope with a Medical Challenge





Face Your Medical Problems with Dignity. Face Your Future with Optimism.

Fill your life with rewarding moments.

Tuesday, August 23, 2016

Support Your Health in One Easy Reading

B'SD

19 Av, 5776

Want to support this blog and your health, perhaps someone else's?

Buy the E-book or print edition of 

http://www.booklocker.com/p/books/3067.html?s=TrackingCode





Find out why medical and mental health professionals recommend the book on and off the cover!





Face Your Medical Problems with Dignity. Face Your Future with Optimism.

Fill your time with helpful actions.

Wednesday, February 1, 2012

All Systems GO for the Refua Radio Show and...

B'SD


8 Shvat 5772


I spent yesterday working on the Shvat 19/February 12 launch of the Refua Radio Show. Healing music has been loaded into the files I plan to use in helping you and other listeners to "Face Your Medical Problems with Dignity and to Face Your Future with Optimism."


My graphic designer has created terrific visual messages for inspiring you to do just that.


Here are some of the thoughts I'll be sharing on the show:


Disabled? Sick? Scared? Carl Jung taught that "I am not what happened to me. I am what I choose to become."

Learn how to make that mindset yours, no matter how or what you've suffered. 


Read

EMPOWER Yourself TODAY. Discover how easy it can be to improve your health, save money and feel safer than before.

Medical and mental health experts who've praised the book on the cover and in their offices are sure you'll enjoy the results at  
http://booklocker.com/books/3067.html







Buy the E-book or print edition today for a brighter today and tomorrow: Click on the words EMPOWER Yourself to Cope with a Medical Challenge



Face Your Medical Problems with Dignity.
Face Your Future with Optimism.



Friday, November 5, 2010

What to Do When Drugs Cause Problems they Should Prevent!

B'SD

28 Cheshvan 5771


This New York Times article names a nasty drug development and marketing problem hurting defenseless people already seriously ill and a possible solution:
http://www.nytimes.com/2010/10/17/health/policy/17drug.html

I read it and then responded to a relevant LinkedIn discussion. I hope this URL will work for non-members of LinkedIn:



If the link didn't work for you, read this reproduced repartee:


John Puma MD asked, "Is this part of DIY, farmers markets before pharmacies, Facebook before family doc, food before drugs? Is it one idea?"

I responded, "It's an interesting take on a difficult dilemma: struggling to prevent one serious problem as we're inadvertently causing others. The intense, short-term pressure to seize solutions before their long-term effects are assessed is gut-wrenching. There are very real time limits on when we can no longer try to salvage or to save endangered lives. So we plunge into the Unknown hoping for the best. But some alleged Unknowns aren't. Evidence exists that some alternatives are better than drugs and surgery. But knowledge of those alternatives might be suppressed/unintentionally limited.

John, I've participated in discussions on this and other LinkedIn lists, and share a consensus with fellow respondents that food can - demonstrably - be medicine. FWIW, I advocate the use of superb nutrition while or instead of pursuing medical procedures. The effects of nutrition have been observed for thousands of years. Their trials are over. Dr .Dean Ornish reverses heart disease with food and lifestyle changes instead of cardiac procedures. Other medical trailblazers do likewise. Choosing low-tech lifestyle changes is risky, frightening and a personal judgment call. It's not a sure thing in any manner. But documented evidence proves that alternative healing/prevention techniques do succeed.

I'm marketing a feature story I wrote about extremely effective low-tech solutions for making the most of the remaining vision in brain-injured patients. The lesson of the medical experts quoted in my piece is this: western medicine too often opts for expensive procedures and/or medications when less lucrative, equally or more effective solutions exist. Patients are not necessarily fully informed of those low-cost, low-risk and high-yield options. Medical practitioners are pressured to make sustainable incomes as insurance companies pull their financial chains. It all makes for a moral mess.

I don't know how best to respond to your "Is this part of DIY?" question with guaranteed validity. I'll take a risk and remark that opening the discussion to invite broader thought processes and considerations (far beyond merely one idea) is a step in very productive directions.

I'm grateful that you have the courage to broach the topic. BTW, I recovered my sight due to a horrific medical situation that almost killed me. Surgery saved my life but not my sight. That returned after I made lifestyle changes. Shocked the heck outta my medical team (mostly teaching professors). I explain how similar choices can save other lives and their quality in an E-book praised by medical and mental health professionals: It's MY Crisis! And I'll Cry If I Need To: EMPOWER Yourself to Cope with a Medical Challenge."


John summed up our thoughts with "Thanks for the really thoughtful response, Yocheved, and good luck with your feature story: I think entertainment venues are underestimated in medicine as effective ways of communicating and actually healing as well. Warm regards, JL"
~*~
Readers, I hope that you and someone who cares about you will ask important questions about the medications recommended to you. The impact on your life could be very, very important.

BTW, I might need to take some time off from updating the blog. My life is a bit hectic just now. I'll do my best to tap at you regularly and ask that you forgive me for occasional lapses.





A Resource Center for Meeting Your Medical Needs: Quick and convenient E-book EMPOWER Yourself to Cope with a Medical Challenge.


Face Your Medical Problems with Dignity.
Face Your Future with Optimism.

Friday, June 5, 2009

Did CNN Miss a Critical Point about Cutting-Edge Healthcare and Orphan Drugs?

B'SD

13 Sivan 5769


Readers, I appeal to you to do something very good for the world at large: contact CNN. Let the staff and worldwide readers there know: They need not be Priced Out of competent, curative medical care as this article indicates:

Patients Priced Out
Sufferers of rare diseases are often priced out of the drugs market because of the high cost.


Contact CNN every which way you can. People need not suffer when solutions exist for them.

Among the refences in the "Resource" section of "It's MY Crisis! And I'll Cry if I Need To: A Life Book that Helps You to Dry Your Tears and to Cope with a Medical Challenge" are

1) a company that refers people to worldwide practitioners of EVERY KNOWN FORM OF MEDICAL TREATMENT. What you'd call "Alternative" or "Complimentary Care" if you're minding Political Correctness protocols, AND what you'd know as standard Western medicine's cutting-edge practitioners.


(I know of ordinary people and medical practitioners whose lives were vastly improved by that one resource. It connected them with the person/s and treatment/s that added life to their endangered bodies. I even wrote a feature story about it all. You can request to purchase the story by contacting me at my journalist's E-address,
yocheved@yochevedgolani.com).

Other references in the "Resource" section of "It's MY Crisis! And I'll Cry if I Need To: A Life Book that Helps You to Dry Your Tears and to Cope with a Medical Challenge" include

2) Contact information for organizations that provide financial and/or other practical help in your quest for recovery and/or coping mechanisms. That sort of help can lead to acquiring or to developing the orphan drug in question, or to something else that can help the person in need.


Help someone you don't even know.
Inform the world at large of a life-saving,
quality-of-life enhancing resource
listed in
"It's MY Crisis!
And I'll Cry if I Need To
."

It truly is "A Life Book that Helps You to Dry Your Tears and to Cope with a Medical Challenge."


To worldwide, affordable medical care,

Yocheved Golani
Coping with a Medical Crisis?
Make the Changes You Need in Your Life