Save your sanity, time & money!

Need solutions for the medication, medical appliances and/or medical travel that you can't afford? READ EMPOWER Yourself.

A Health Information Management professional, I survived a life-threatening emergency with information that only a person of my professional experience would know. And I’m sharing it!

Showing posts with label Invisible Disability. Show all posts
Showing posts with label Invisible Disability. Show all posts

Monday, November 26, 2018

The Power of Having Fun, Clinical Trial Information, Traumatic Brain Injury (TBI) Help and MORE!

B'SD

18 Kislev, 5779

I'm enjoying the fun of preparing for Hanuka, and helped some local children to prepare faux candle holders for a school project.

One of the key aspects of my recovery from a devastating medical situation was that I resolved to have fun as I pursued a recovery against BIG medical odds. I love to laugh, and to hear other people laughing, too. It is a refreshing activity that signals the world "I can feel joy."

Medical miracles abound when a person feels happy, remains focused on the future, and is productive. That's hard to do when medical professionals, and all too often negative relatives and other acquaintances, forecast disaster. I recommend fighting back with a smile. More on that tomorrow. Meanwhile...


I've been following the development of an interesting new resource for people with Traumatic Brain Injury (TBI), a valid but widely unknown medical diagnosis.
TBI is not observable outside the person's body. The situation is called an "invisible" illness like others in that category: Cancer, Diabetes, Fibromyalgia, IBS, Infertility, Multiple Sclerosis, Neurological disease(s), and others.

Check out www.facesoftbi.com/notinvisible. You don't need to buy all the merchandise there. I'm directing you to the site for its information, to ease your sense of feeling alone, weird, and/or hopeless if you've experienced a TBI.

Are you desperately searching for clinical trial information in one of the world's leading medical research resources, Israel? Click HERE.

Here's something for almost everyone who's experienced a medical setback: a gift that can pay off long into the future. Doctors on and off the book's cover recommend reading 




BUY it HERE. 



The book is not so much about the techniques that I used to recover from a medical horror and consequential blindness, but about YOU the reader. There are exercises for building inner strength, putting a chaotic medical life into perspective and into a far more orderly, manageable reality. You can even get your grin back with laugh-out-loud passages.

Cost-cutting information about how to contact charitable organizations willing to pay some or all of your specific medical bills clinical trial information and other sanity-savers are in the book's Global Resources section. There are even tips on how to secure no-cost first-quality medical appliances, medical care, and medication!






Want to cope with medical and/or mental health problems, including the expenses for your care? Buy the E-book or print edition of EMPOWER Yourself to Cope with a Medical Challenge




http://www.booklocker.com/p/books/3067.html?s=TrackingCode


Face Your Medical Problems with Dignity. Face Your Future with Optimism.


Fill your plans with can-do opportunities.

Friday, August 10, 2018

What to Do When DOCTORS have Disabilities?

B'SD

29 Av, 5778

I prepared this post before going to bed last night. I had no idea what'd happen between my rest and the time that this post went active.


At any rate, here it is:

Here's something that ill people rarely believe: Doctors can become frail and also need help to manage life better, as do some patients.

Do you find that startling news? Consider this excerpt from a recent news story:


"... Doctors are often portrayed as pinnacles of health, superhumans responding to emergencies around the clock, performing miracles of all kinds. They're seen as the fixers, not the ones ever in need of accommodations or care.





"This profession historically has viewed themselves as able-bodied in the extreme," Iezzoni says.
Now, a growing movement of current and aspiring doctors with disabilities is starting to challenge that narrative, saying it is a disservice both to the medical profession and to patients.
It's important to acknowledge and accommodate medical professionals with disabilities, says Lisa Meeks, a psychologist and researcher at Michigan Medicine specializing in disabilities in medicine and medical education. "It deserves attention and its own problem-solving," she says...

Learn more when you read National Public Radio's presentation about doctors with disabilities.





Buy the E-book or print edition of EMPOWER Yourself to Cope with a Medical Challenge


http://www.booklocker.com/p/books/3067.html?s=TrackingCode




Face Your Medical Problems with Dignity. Face Your Future with Optimism.

Fill your life with a Can-Do attitude!

Tuesday, May 1, 2018

Brain Tumor Awareness Month and Dealing with an Invisible Disability!

B'SD

17 Iyar, 5778

If you're a longtime fan of this blog, you know that I'm a survivor of a non-cancerous but very deadly brain tumor (a petroclival tentorial meningioma, which means it was at the base of the skull, under the brain). 

Life-saving emergency surgery saved my life, but the tumor had damaged me in several ways. Physical, occupational and speech therapy helped me to fashion a fresh take on life. That took a lot of physical and emotional effort on my part.

In honor of Brain Tumor Awareness Month, I shared some information on one of my facebook pages moments ago. And I shared a bit of insight into what having an invisible disability means to a person.






Yocheved Golani shared a post.
8 hrs
This month, let's raise our voices together to make people aware of the obstacles we face and how we can overcome them.



For Brain Tumor Awareness Month (BTAM), join us in raising the profile of the disease and taking action to fund new research and an eventual cure.
BLOG.BRAINTUMOR.ORG
Comments
Yocheved Golani A bit of insight into some of the ramifications: Ever notice that I tend to hold something in each hand when I walk? It's a coping mechanism for bypassing the vertigo aka proprioception problem which can overcome my senses and leave me floundering to recover my balance. I need cues to alert my mind that I am standing upright, not at an angle, not falling and not upside down. Feeling the objects in my hands provides a tactile cue to my orientation on the planet. However, my newer, genius physical therapist took me past that stage. I can now walk without assistance, empty-handed. It's been a long sought goal. 

Please focus on compassion for someone dealing with an invisible disability. There are too many to count. And some of us simply deserve respect for the efforts we make whether the public perceives them or not.

Manage




Reply1mEdited




I survived the ordeal based on intuition, and as a supervisor of medical records and medical record coding. My wide-ranging knowledge of coping mechanisms within the medical world is an accumulation of facts rarely known to non-medical members of the public.

I poured that information into the E-book and print editions of EMPOWER Yourself to Cope with a Medical Challenge

BUY your copy today, and find out how to simplify your recovery from some sort of medical or mental health setback. Get your grin back when you read 








Face Your Medical Problems with Dignity. Face Your Future with Optimism.

Fill your time and efforts with purpose, and a sense of pride.