It's MY Crisis and I'll Cry if I Need To: Brain Tumor Awareness Month

Showing posts with label Brain Tumor Awareness Month. Show all posts

Tuesday, May 1, 2018

Brain Tumor Awareness Month and Dealing with an Invisible Disability!

B'SD

17 Iyar, 5778

If you're a longtime fan of this blog, you know that I'm a survivor of a non-cancerous but very deadly brain tumor (a petroclival tentorial meningioma, which means it was at the base of the skull, under the brain).

Life-saving emergency surgery saved my life, but the tumor had damaged me in several ways. Physical, occupational and speech therapy helped me to fashion a fresh take on life. That took a lot of physical and emotional effort on my part.

In honor of Brain Tumor Awareness Month, I shared some information on one of my facebook pages moments ago. And I shared a bit of insight into what having an invisible disability means to a person.

Yocheved Golani shared a post.

8 hrs

National Brain Tumor Society

8 hrs

This month, let's raise our voices together to make people aware of the obstacles we face and how we can overcome them.

BTAM 2018: Raising Our Voices Together

For Brain Tumor Awareness Month (BTAM), join us in raising the profile of the disease and taking action to fund new research and an eventual cure.

BLOG.BRAINTUMOR.ORG

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Yocheved Golani A bit of insight into some of the ramifications: Ever notice that I tend to hold something in each hand when I walk? It's a coping mechanism for bypassing the vertigo aka proprioception problem which can overcome my senses and leave me floundering to recover my balance. I need cues to alert my mind that I am standing upright, not at an angle, not falling and not upside down. Feeling the objects in my hands provides a tactile cue to my orientation on the planet. However, my newer, genius physical therapist took me past that stage. I can now walk without assistance, empty-handed. It's been a long sought goal.

Please focus on compassion for someone dealing with an invisible disability. There are too many to count. And some of us simply deserve respect for the efforts we make whether the public perceives them or not.

Manage

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I survived the ordeal based on intuition, and as a supervisor of medical records and medical record coding. My wide-ranging knowledge of coping mechanisms within the medical world is an accumulation of facts rarely known to non-medical members of the public.

I poured that information into the E-book and print editions of EMPOWER Yourself to Cope with a Medical Challenge.

BUY your copy today, and find out how to simplify your recovery from some sort of medical or mental health setback. Get your grin back when you read

Face Your Medical Problems with Dignity. Face Your Future with Optimism.

Fill your time and efforts with purpose, and a sense of pride.

Friday, May 16, 2014

How to Improve Your SOUL with Brain Tumor Awareness Month

B'SD

16 Iyar, 5774

Whew, I've been studying hard, doing LOTS of homework, taking many "chapter this or that" exams as I build momentum to take my medical coding finals (several tests are involved over a course of spaced intervals). Meanwhile, the rest of life continues.

May is

Brain Tumor Awareness month!

Want to make a positive difference in life as this young man did?

Find out how you can help in hospitals and rehabilitation centers.

Focus on your skills and interests and how they can enhance someone else's life.

Donate your time and energy to improve the quality of life for other people.

Heartwarming rewards will be yours to cherish. Your soul will grow as you give to others.

If you believe you can't possibly do any of that because of your medical or mental health condition, I recommend a book that explains how to overcome those and many other can-be temporary setbacks ;^ D

Here's to looking at life as a glass half full
and filling higher!

Buy the E-book or print edition of EMPOWER Yourself to Cope with a Medical Challenge. Learn how to polish your emotional self to shine like silver (really!).

Face Your Medical Problems with Dignity. Face Your Future with Optimism.

Failure is not for you.

Friday, May 15, 2009

BIG News in the Brain Tumor Research World!

B'SD

21 Iyar 5769

If you're in the United Kingdom and you're caring for someone with a brain tumor, then you need to know about the 7-8 July 2009

Brain Tumour UK's 9th Annual Patient and Carer Conference 7-8 July 2009

As for the rest of us around the world coping with brain tumors - or recovering from their removal - click below to find out about

Hats Recognize National Brain Tumor Awareness Month

I know what you're thinking:I'm Buying "It's MY Crisis! And I'll Cry if I Need To: A Life Book that Helps You to Dry Your Tears and to Cope with a Medical Challenge" to Learn More About Protecting Inner and Outer Health.

To your good health,

Yojeved Golani
Coping with a Medical Crisis?
Make the Changes You Need in Your Life

Friday, May 1, 2009

BIG News from the Musella Foundation For Brain Tumor Research

Al Musella of The Musella Foundation recommends

"It's MY Crisis! And I'll Cry if I Need To."

I'm proud to share the news of:

Musella Foundation For Brain Tumor Research & Information

Spring 2009 Update

1. I would like to share with you some exciting news. I will be receiving the Voices Award from Voices Against Brain Cancer (VABC). The Voices Award is given for dedication and charitable giving to brain cancer research and support. This award will be presented at VABCs fourth annual fundraising event, Sounding Off For A Cure, to be held on Thursday, June 4, 2009 from 6:00 PM to 10:00 PM at Hammerstein Ballroom in New York City. For details on attending and for information about VABC, visit them online at http://www.voicesagainstbraincancer.org/

The Musella Foundation has been working together with VABC to raise brain tumor awareness and to raise money for brain tumor research. We will be working together in October for the first ever Brain Tumor Awareness Day at the Nassau Coliseum for the home opener of the New York Islanders. (Save the date!). We recently awarded our first joint grant, for an exciting research project on a new, safer and more effective type of radiation for brain tumors, here on Long Island at Brookhaven National Lab. We hope to fund more research projects together in the future.

2. The Musella Foundation, along with the Brad Kaminsky Foundation and Unlocking Brain Tumors, has formed a new organization – the Grey Ribbon Crusade - to get brain tumor organizations and individuals to work together to speed up the search for the cure by quickly funding important research projects together. We now have 44 non-profit organizations (including VABC) and hundreds of individuals from all 50 states working together. Visit greyribboncrusade.org for details. We already funded 7 important research projects and are picking up steam!

3. We are working with the members of the Grey Ribbon Crusade to launch the Brain Tumor Text Challenge, in time for Brain Tumor Awareness Month (May). We ask YOU to make a $5 donation by texting BRAIN to 40579. The $5 donation will be charged to your cell phone bill. Then ask 5 of your friends to do the same. A one-time charge of $5.00 will be added to your mobile phone bill. In addition to your $5.00 donation, standard text messaging rates may apply. Most cell carriers are participating, but if your does not, or if you prefer to donate by credit card, you can make the $5 donation online at http://greyribboncrusade.org/donate

Please help us spread word of this fundraiser. Go to http://greyribboncrusade.org/text.cfm for details and sample flyers that you can send out!

4. The Musella Foundation testifies at ODAC hearing for Avastin for Brain Tumors! I addressed the Oncologic Drug Advisory Committee on 3/31/2009 as one of the patient advocates. I presented data from our ongoing Brain Tumor Virtual Trial, along with 1,300 letters of support from our members, which helped sway the committee to vote unanimously for approval! The FDA will consider the ODAC vote and make a final decision by May 5th. You can see my testimony at http://virtualtrials.com/fda2009.cfm

5. We are planning 2 conferences for patients, families, friends and health care providers. A basic introductory conference in NJ on May 9th and an advanced conference in Oregon Sept 18th and 19th. See http://www.virtualtrials.com/news.cfm for details!

Sincerely,

Al Musella, DPM
President
Musella Foundation For Brain Tumor Research & Information, Inc
1100 Peninsula Blvd
Hewlett, NY 11557
888-295-4740
virtualtrials.com
al.musella@virtualtrials.com

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Reviews of "It's MY Crisis! And I'll Cry if I Need To"

I loved your book! I gave it to many friends of mine. Arlene Abrams of Trixie & Jane
www.trixieandjane.com

"Inspirational. Informative. Entertaining. Powerful stuff!" - S. Schnee

"I received EMPOWER Yourself to Cope with a Medical Challenge one week after I suffered my own medical crisis and found it very helpful. [It] will be of great benefit both in dealing with the fragile emotional health of sick patients and the stressful situation of the patient's caregiver… [with] very practical comprehensive information for dealing with a health-related crisis that is so seldom available to someone who is ill and preoccupied with their own troubles.

Ill people are often compromised and often don't know where to look for guidance. Putting so much useful information at their fingertips will help them navigate the difficulties of a confusing medical system. Combined with [the author's] encouragement to never give up hope, the book will be of great aid to anyone with a sudden serious medical emergency." - Daniel Eisenberg, MD, Department of Radiology at the Albert Einstein Medical Center in Philadelphia, PA; Assistant Professor of Diagnostic Imaging at Thomas Jefferson University School of Medicine; Medical Ethicist http://www.daneisenberg.com/

"… a powerful 'can-do' message to those most in need of it …It could save your life or the life of your loved one. This combination of positive attitude and positive action makes this guide useful and complete. Its lessons extend far beyond the medical sphere to life challenges whatever they may be: lessons we can't afford to ignore." – Life Coach Y. Ives, England

“I’ve given Yocheved’s book to therapists and to several patients on chemotherapy. They found it very helpful.” - Abraham J. Twerski, M.D., Gateways Addiction Rehabilitation Founder and Therapist

"She’s Jewish and I'm Christian, but the importance of the spirituality in It’s MY Crisis! was incredibly accurate.” Carl Phillips, ASTA Certified Hospital Consultant and Wesleyan lay minister

"... This life-saving workbook will help you direct your thoughts in positive, constructive ways that will make a big difference for you and your loved one. It's a lantern in a dark night from someone who's 'been there, done that.' And if you follow its suggestions, you'll likely come through the crisis better, not bitter. It's filled with wonderful ideas." Robin L. Silverman, Fullistic Living(TM) Fortune 500 Motivational Speaker

"Through her inspiring honesty, courage and strength, Yocheved shows us how the importance of a positive attitude and will to live are both essential to healing and recovery through all of life's challenges." - D. Topolosky, Psychologist

"A very helpful book. I bought multiple copies for friends and family. Spiritual, comforting, funny and informative." Menachem, Menachem Herman Orchestra

"... The inspiration and determination of this woman through positive reinforcement and amazing faith has made her a medical miracle and a wonderful example to us all. It's a must read for all!" - Renee Crowell

"An incredible wealth of information: spiritual, philosophical, medical, psychological, etc! The book is filled with sound ideas and sage advice." D. Myers

"… this insightful and uplifting book guides us to confront illness in a multi-modal fashion... using all resources at our disposal—humor, creating a positive emotional environment, self-nurturing, friends, outside resources, medical and alternative practitioners—to fight illness.

"Yocheved Golani gives excellent advice on how we can build and preserve good morale, get help when we need it, stay organized with appointments, medication, bills, etc., prepare for hospitalization, focus on our blessings and healing.… this book gives Resources... contact information about organizations and treatment centers that deal with specific medical problems... that most people wouldn't know how to find, including compassionate clowns, services for blind people, where to get free medical care and medications, and where to enroll in clinical trials.

"It's My Crisis!" masterfully offers ... practical recommendations, emotionally-uplifting advice, medical resources, and spiritual guidance to face, and hopefully overcome, medical illness. In the process, [Yocheved] inspires us to transform ourselves into better spiritual and emotional beings." - Dr. Lisa Aiken, Psychologist

"A truly amazing and uplifting story - the book, is a must have manual, not only if you're going through a crisis - but gives strength to everyone, seeing how 1 woman, is so brave and so clear about where her Blessings come from - Hashem. Buy the book, read it, and buy it for a friend, you'll be glad you did. " - SH

Read this Excerpt from "It's MY Crisis!" Medical, Mental Health Professionals Use it! You Can, Too:

IT'S HARD TO COPE The pressure's on. We want to be heroes at saving our own lives, or somebody else wants us to be heroic. [But] we feel like quitting this scary situation. As the mental pressure builds, our minds sort of explode. We might start asking "Why is this happening to me?" We don't ask that question because we necessarily want answers… The question is really about accusing GOD of having made a mistake- a BIG mistake. We don't believe we deserve the troubles and pain that we're in... it can make a suffering person feel infuriated. That can lead to a sense of guilt. [You need to realize that] acceptance is a process. Normal people need time to come to grips with their medical crisis… Asking "Why ME?" [could mean] "How can I get out of this situation?" … What if you're afraid that you DESERVE this medical crisis? I have two user-friendly responses to those questions…

RESOURCES … information helpful to people facing medical crises worldwide…

Hire Me to Speak for YOUR Organization:

BOOK ME TO SPEAK FOR YOUR ORGANIZATION!

G-mail not working? Click HERE.

AUDIENCE COMMENTS
"Rich in resources for healing. Cutting-edge information and great prose." Emcee

"... This comprehensive book helps individuals navigate the medical system... when dealing with medical crises for oneself or for a family member. There is an abundance of resources, including special doctors, listed toward the end of the book." - Laurie Sussman

"I just heard you on the radio. I can honestly say that you were amazing and very inspiring." - Sara Dina Golembo

NOVEMBER 11 2007 : "I had the privilege of having Yocheved speak [in my] home yesterday. If you have not had the opportunity to hear her amazing story and read her new book, you are truly missing out. It is a life-changing experience. One that I am very grateful to have had... Do yourself a favor and let Yocheved's experience change your life!" Renee Crowell

DOES YOUR ORGANIZATION SERVE THE NEEDS OF ILL PEOPLE? Need a speaker? INVITE ME to speak about Coping with Illness techniques for a crowd.

Get Your Grin Back with Giveret Golani Self-Help Coaching!

My SELF-HELP COACHING Services

MEETING GOALS. PLANNING STRATEGIES.

TIME and ORGANIZATION MANAGEMENT.

IMPROVING YOUR HEALTH .

COPING with EMOTIONAL and PHYSICAL STRESS.

Conventional therapy focuses on the past. My Self-Help Coaching focuses on your present and more importantly, on your future!

We'll work together to identify and to build on your existing strengths. You can use ensuing insights into achieving productive goals.

Giveret Golani Self Help Coaching is based on using the TOOLS that work for an individual client. The GOALS of Giveret Golani Life Coaching are to assist you in making desired transitions in your personal lives, enabling you to increase your self-esteem and to make more and ever-greater accomplishments. We'll focus on your future and on getting better results than you've experienced in the past.

Listen to how a recent client praised my work: "...I just wanted to let people know about a great resource I discovered. She does life / self-actualization coaching, among many other things. She's written several books, please take a look at the links below. She has very deep wisdom from life experience, and a great deal of practical sense. She specializes in coping with serious illness, but she works with all kinds of issues, as well. I had a great session with her today where she took a heap of ungrounded aspirations (eg., I want to write / get my ideas out into the world....somehow) and, in an hour and a half, turned them into a viable,workable action plan I could get started on and feel good about right away (a timeline and lots of practical sugestions to focus my energy on an attainable goal..."

You won't get lectures from me about what to do with your life. We'll explore that topic together! I'll listen to the goals you want to reach, ask lots of clarifying questions, then work with you to achieve your goals. You set the pace, I help you to keep going and to reach your destination.

Contact me to learn more: giveretgolani@gmail.com

Medical Disclaimer

The information and ideas in my Self Help Coaching work, in this blog and in my book are not intended to replace personal advice from licensed physicians, and they do not constitute a doctor-patient or therapist-client relationship. Information in the above-mentioned resources is provided for informational purposes only. It is not a substitute for professional medical advice, nor a substitute for diagnosing or treating an emotional, mental, or medical condition. You need to consult board certified medical and mental health professionals in all matters relating to your health, and for suspected symptoms of illness requiring diagnosis or medical attention (including simple first aid). For spiritual matters, consult sensibly behaved clergy who demonstrate complete respect for your wellbeing. Your actions, based on information culled from my resource materials, are at your own responsibility and discretion. Yocheved Golani and Booklocker.com are not liable for any direct or indirect claim, loss or damage resulting from use of my book or blog and/or any media materials including web site(s) and blogs linked to/from it.

Readers RAVE About "It's MY Crisis!" Rich in resources. Cutting-edge information.

"This has such powerful life changing tools that it is amazing that it fits in one book. Really powerful insights that can improve so many situations even without an illness in the family. Great Work! A must read for anybody who really wants a better life!" Robert Hunds Oct 1 2009 (he found it via the flipping BookBuzzr below. It appears on my E-mail)
"I read thru most of Yocheved Golani's book. Of course I found it almost personalized so I treat it as a resource guide.I will undoubdedly re-read after I get an overview but it is a great read and she is obviously quite a woman." - James Owen (Tzadok Osher) Herlands
"... a helpful, informative text that can bring hope, help and humor to someone experiencing a medical crisis." - Dr. Lisa Aiken, Psychologist
"INSPIRATIONAL!!!" - R. Grund
"It is good. I added it as a recommended book to our book list." - Al Musella, The Musella Foundation For Brain Tumor Research & Information
Check out this GLOWING REVIEW by a world-famous psychologist!
Share the book with friends and loved ones, medical and mental health professionals, or read it alone. Start relaxing with the very first page. It’s MY Crisis! can solve or prevent MANY problems for you or your loved ones.

READ A SAMPLE CHAPTER:

See:
Solve, Even Prevent a Medical Crisis!

Reader's Reviews at Amazon.com

Details with Nikki Leigh

Rose Marie Wolf Interviews Yocheved Golani

"The workbook is very good! We're glad we had you speak for our clients and supporters." Karen Traub, co-founder Jewish Caring Network

“Friends of ours have a young child recently diagnosed with Muscular Dystrophy (currently a terminal diagnosis). I assisted them with [It's MY Crisis! And I'll Cry if I Need To]... It enabled them to face their challenge with strength.” Psychotherapist Jonathan Dove, UK

"It's MY Crisis! And I'll Cry If I Need To is very interesting and useful. It can help people with emotional difficulties. I have ALS disease, and I found much of Yocheved's advice useful. I have implemented it in my life. I recommend that everyone, including healthy people, read this book in order to increase the quality of their lives." Dr. Rahamim Melamed-Cohen, Former National Supervisor of Educational Programming for Israel's Department of Education - Jerusalem, Israel

"... Yocheved Golani has created a wonderful resource for those going through... life crises. Written with hopefulness, optimism... Yocheved’s book inspires and guides us to meet our own challenges with strength, determination, resilience, and faith." Shiela Strauss, Ph.D., Public Health Researcher USA

Benefit from the positive impact of the book’s humor, insight, can-do exercises and cost-cutting medical information.

The FIRST EDITION of It's MY Crisis! And I’ll Cry if I Need To truly is "A Life Book that Helps You to Dry Your Tears and to Cope with a Medical Challenge."

Get it from Barnes & Noble ! Free shipping on orders of $25 or more. Buy copies for family and friends!

Order DIRECTLY from the PUBLISHER, Booklocker, for faster delivery. For $13.95 plus shipping, you can ease your mind and cope better with a medical crisis!

Save money on bulk orders! E-mail angela - at - booklocker.com or CLICK HERE!

Want cases of FIRST EDITION of "It's MY Crisis"? Fax requests to USA # (207) 262-5544.

Save your sanity, time & money!

Tuesday, May 1, 2018

Brain Tumor Awareness Month and Dealing with an Invisible Disability!

Yocheved Golani shared a post.

Comments

Friday, May 16, 2014

How to Improve Your SOUL with Brain Tumor Awareness Month

Friday, May 15, 2009

BIG News in the Brain Tumor Research World!

Friday, May 1, 2009

BIG News from the Musella Foundation For Brain Tumor Research

EMPOWER YOURSELF with the Updated 2nd Edition of "It's MY Crisis! And I'll Cry if I Need To"

The First Edition

Ratings by outbrain

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